資料來源:瑞典手汗交感神經切除術受害者聯盟
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SIDE EFFECTS
When you let yourself go through such a "secure" surgery as the ETS (Endoscopic Thoracic Sympathicothomy) you do not expect any negative complications or side effects. Especially since the hospitals all the time claim that the only known side effects are Horners Syndrom and mild compensatory sweating. Therefore the trauma and the doubt is extremly intense when you either at once after the operation or gradually during several months or years find that the body in many ways has "ceased to function".
Several members in our association have, when the symptoms occured, contacted the operating surgeon to ask if this is a consequence of the operation. The answer has always been that they never have heard of these kind of side effects, YOU must be an exceptional case! Through mouth-to-mouth and a couple of investigating TV-shows in Sweden the crowd of us "lonely exceptional cases" has grown to about 130 patients. We claim that this is only the top of the iceberg!
Through a detailed inquiry among our members we are now trying to map all our symptoms. We have in earlier investigations found these side effects.
• Severe compensatory sweating
• Decreased physical capacity
• Reduced blood circulation
• Stomach problems (constipation or diarrhea)
• Impotence
• Oversensitivity to stress
• Oversensitivity to sounds
• Oversensitivity to light
• Muscle weakness ("lactic acid in the arms")
• Cold hands and feet
• Horners syndrom
• Reduced pulse reaction
• Shortness of breath
• Pain in arms and back
• Cronic fatigue, lack of energy
• Raynauds disease
3、EST交感神經節切除術的副作用
資料來源:“瑞典ETS受害者聯盟”
EST交感神經切除術的副作用
網站:http:home.swipnet.se/symplastiske/bcckground.htm
EST(交感神經切除術)的副作用
當你接受一種“安全”手術,例如ETS(Endosopic Thoracic Sympathectmy 交感神經切除術)的時候,通常您不會預期會有甚麼副作用或併發症,尤其是當醫院一直都宣稱唯一已知的副作用是荷納氏症候群(Horner’s Syndrome)及輕微的代償性出汗。
但您感受到的卻是一動完手術就有強烈的傷害及疑問,這種傷害的感覺隨著時間的過去,不但不會淡化好轉,反而越來越嚴重,很多人覺得肉體好像“功能停頓”。
我們有些成員在術後發生不適症狀的時候,向主刀醫師詢問,是不是這種手術都會有這種結果。所得到的答案都是千篇一律的:他們不曾聽說過患者有如此反應或副作用,“您”是唯一的個案。
時間久了,個案多了,這些“孤獨的例外案例”一經媒體曝光,發現原來他們並不孤獨,實際上是有一大群,達130位瑞典人,我們認為這些人可能只是冰山的一角。
根據我們的調查問卷顯示,有下列諸多後遺症:
a、Severe compensatory sweating 嚴重代償性出汗
b、Decreased physical capacity 體能變差
c、Reduced blood circulation 血液循環變差
d、Stomach problems (constipation or diarrhea)腸胃道問題(便秘或腹瀉)
e、Impotence 陽痿
f、Oversensitivity to stress 對壓力過度敏感
g、Oversensitivity to sounds 對聲音過度敏感
h、Oversensitivity to light 對光過度敏感
i、Muscle weakness(“lactic acid in the arms”)肌肉無力(乳酸堆積在手臂)
j、Cold hands and feet 手足冰冷
k、Horner’s syndrome 荷納氏症候群
l、Reduced pulse reaction 脈搏變慢
m、Shortness of breath喘不過氣
n、Pain in arms and back手臂及背痛
o、Cronic fatigue,lack of energy慢性疲勞,缺乏能量
p、Raynauds disease雷諾氏症
q、Many of the symptoms are simial to those that come with chonic tatigue syndrome or Fibromyalaia
Raynauds disease 有很多症狀跟慢性疲勞症候群或肌纖維痛極為類似
我們之中很多人被迫改變其生活方式。體力勞動對我們來說是不可能的,有些人發現無法持續做原來的工作,不得不換工作,有些人失去工作能力而不得不提早退休。
SIDE EFFECTS
When you let yourself go through such a "secure" surgery as the ETS (Endoscopic Thoracic Sympathicothomy) you do not expect any negative complications or side effects. Especially since the hospitals all the time claim that the only known side effects are Horners Syndrom and mild compensatory sweating. Therefore the trauma and the doubt is extremly intense when you either at once after the operation or gradually during several months or years find that the body in many ways has "ceased to function".
Several members in our association have, when the symptoms occured, contacted the operating surgeon to ask if this is a consequence of the operation. The answer has always been that they never have heard of these kind of side effects, YOU must be an exceptional case! Through mouth-to-mouth and a couple of investigating TV-shows in Sweden the crowd of us "lonely exceptional cases" has grown to about 130 patients. We claim that this is only the top of the iceberg!
Through a detailed inquiry among our members we are now trying to map all our symptoms. We have in earlier investigations found these side effects.
• Severe compensatory sweating
• Decreased physical capacity
• Reduced blood circulation
• Stomach problems (constipation or diarrhea)
• Impotence
• Oversensitivity to stress
• Oversensitivity to sounds
• Oversensitivity to light
• Muscle weakness ("lactic acid in the arms")
• Cold hands and feet
• Horners syndrom
• Reduced pulse reaction
• Shortness of breath
• Pain in arms and back
• Cronic fatigue, lack of energy
• Raynauds disease
3、EST交感神經節切除術的副作用
資料來源:“瑞典ETS受害者聯盟”
EST交感神經切除術的副作用
網站:http:home.swipnet.se/symplastiske/bcckground.htm
EST(交感神經切除術)的副作用
當你接受一種“安全”手術,例如ETS(Endosopic Thoracic Sympathectmy 交感神經切除術)的時候,通常您不會預期會有甚麼副作用或併發症,尤其是當醫院一直都宣稱唯一已知的副作用是荷納氏症候群(Horner’s Syndrome)及輕微的代償性出汗。
但您感受到的卻是一動完手術就有強烈的傷害及疑問,這種傷害的感覺隨著時間的過去,不但不會淡化好轉,反而越來越嚴重,很多人覺得肉體好像“功能停頓”。
我們有些成員在術後發生不適症狀的時候,向主刀醫師詢問,是不是這種手術都會有這種結果。所得到的答案都是千篇一律的:他們不曾聽說過患者有如此反應或副作用,“您”是唯一的個案。
時間久了,個案多了,這些“孤獨的例外案例”一經媒體曝光,發現原來他們並不孤獨,實際上是有一大群,達130位瑞典人,我們認為這些人可能只是冰山的一角。
根據我們的調查問卷顯示,有下列諸多後遺症:
a、Severe compensatory sweating 嚴重代償性出汗
b、Decreased physical capacity 體能變差
c、Reduced blood circulation 血液循環變差
d、Stomach problems (constipation or diarrhea)腸胃道問題(便秘或腹瀉)
e、Impotence 陽痿
f、Oversensitivity to stress 對壓力過度敏感
g、Oversensitivity to sounds 對聲音過度敏感
h、Oversensitivity to light 對光過度敏感
i、Muscle weakness(“lactic acid in the arms”)肌肉無力(乳酸堆積在手臂)
j、Cold hands and feet 手足冰冷
k、Horner’s syndrome 荷納氏症候群
l、Reduced pulse reaction 脈搏變慢
m、Shortness of breath喘不過氣
n、Pain in arms and back手臂及背痛
o、Cronic fatigue,lack of energy慢性疲勞,缺乏能量
p、Raynauds disease雷諾氏症
q、Many of the symptoms are simial to those that come with chonic tatigue syndrome or Fibromyalaia
Raynauds disease 有很多症狀跟慢性疲勞症候群或肌纖維痛極為類似
我們之中很多人被迫改變其生活方式。體力勞動對我們來說是不可能的,有些人發現無法持續做原來的工作,不得不換工作,有些人失去工作能力而不得不提早退休。
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