16-05-16.別讓醫師毀了你的神經系統─ETS

作者為瑞典ETS交感神經切除受害者聯盟主席

　
Don’t let the ETS doctors destroy your nervous system! 別讓醫師毀了你的神經系統
　
內視鏡胸腔交感神經切除手術
　
簡稱 ETS (Endoscopic Thoracic Sympathectomy)


My name is Morgan Carlsson and I am chairman of an support group, called FFSO, in Sweden for ETS patients. Side effects may arise in some patients after many years. In FFSO we have a girl who had ETS surgery when she was 15 years old, and she was happy for 9 years before the side-effects started. There are many other examples of this. Three, four, or 5 years after ETS surgery to suffer side-effects is nothing unique. There may be people who are happy today, but will be unhappy tomorrow. The ETS doctors have always ignored the side effects. Now they say severe compensatory sweating was not known of before 1997. However, I had ETS in 1992 and have lived with these side effects for over 10 years. In 1988 I was in a car accident and had severe burns. My neck, back and leg were destroyed and I started to sweat under my arms. I was then diagnosed with Post Traumatise Stress Disorder (PTSD). I then happened to read about this "fantastic" ETS operation at Bor廛 hospital. I decided to go ahead with it, seeing it was meant to cure an awful problem. The night before the operation I told my surgeon about the accident and he said, "1 in 1000 could maybe get mild, but not noticeably, sweat on the body and it was nothing to worry about".


That was all the information I had been given before my operation. One week after the operation the side effects started, severe CS and pain in my whole body. I phoned Dr Drott, and he said he has never heard of this, and it has not happened to any one else. He said the problem must be with just me. I didn get any help. In 1994 I tried to take my life 2 times. Then I saw a TV program here in Sweden. Norra Magasinet was talking about side effects from ETS, and about other people who were in the same situation as me. It was then that I contacted Jerry Rudenvall (he is now vice-chairman in FFSO), and he said that he wanted to start an organisation for people who had side effects from ETS. In 1999 we started FFSO and today we have contakt with over 300 peopel here in Sweden, who's lives have been destroyed by ETS.


Many of the members have had the same answers from their surgeons...that they have never heard of these side effects. The statistics in reports are false, saying nearly 98% are satisfied, and that there is no evidence of physical delay in any way. Since 1999 I have got over 3000 e-mails(三千封以上) and a lot of phone calls from all over the world from people who also have side-effects from ETS. There are so many e-mails that I haven't go time to answer. There are now some smaller hospitals in Sweden who have now stopped performing ETS sugery, because of the side-effects(由於不良副作用的關係一些小型醫院已經不再作ETS手術), 作. We have also since caused new rules to be made by the Swedish Health Authority. ETS in Sweden can no longer be performed on anyone under 20 years of age(在瑞典已經立法禁止二十歲以下的人作ETS手術), and should only be performed as a last solution when everything else has been tried(而必須其他方法都先試過無效才可作ETS手術). Two to Three years ago I got e-mails from people asking if I could speak to them about side-effects from ETS. They instead listened to the ETS doctors, and I have recently got e-mails from the same people who wish they had listened to me. It is up to you if you prefer to listen to the ETS doctors or to a patient who has experienced the surgery.到底要聽外科醫師 還是聽實際接受過手術後 病患的感受由你自己判斷 Anyway I lessened to my surgeon and it has ruined 10 years of my life physically, psychically, socially and economically.


(ETS手術 已經毀了我的 身體 心靈 社交 經濟 十年了)


(瑞典FFSO主席)


Morgan Carlsson chairman of FFSO


Spadegatan 9432 37 Varberg


Sweden


Fax/Tel: +46 340 8010


home.swipnet.se/sympatiska



別讓醫師毀了您的神經系統－ETS（作者為瑞典ETS交感神經切除受害者聯盟之主席）


我的名字叫Morgan Carlsson，我是瑞典ETS交感神經切除術受害者聯盟（FFSO）的主席。


ETS交感神經切除術的後遺症有可能在手術多年後才出現。


在瑞典，有一位女生在15歲時接受手術，他在副作用顯現前，過了9年的快樂時光，像這樣的例子很多，有些人是在手術後3、4、5年後不等，副作用才顯現。


做ETS交感神經切除術的醫師經常忽略其副作用。現在他們說嚴重的反射性出汗一直到1977年才出現，然而我在1992年做ETS手術，我跟嚴重副作用共存已超過10年了。


1988年，我發生嚴重車禍，嚴重燒傷我的頸、背及小腿皮膚毀壞，開始上臂出汗，我被診斷成創傷壓力症候群（PTSO）。


我由Bor醫院得知ETS這種“夢幻式＂的手術。我決定去做這手術，寄望能治癒我恐怖的麻煩。


手術前一晚，我問醫師手術的危險性，他說：代償性出汗的機率只有千分之ㄧ，同時身體的流汗是沒有什麼可擔心的。


這就是我在手術前得到的所有資訊，手術一星期後，副作用就開始了，我全身都反射性出汗以及全身痛。


我打電話給Dr. Drott，他說他不曾聽說過有這種副作用，“只有您有這種副作用＂我得不到任何幫忙。


我受苦了兩年後，在瑞典電視上看到Norra Magasinut女士說到他做過ETS交感神經切除術的副作用，其他很多人也都有跟我類似副作用。


後來我跟Jerry Rudenvall（他現在是FFSO的副會長）認識。他說他組織一個ETS交感神經切除受害者協會。1995年協會組成，我們接觸了300個做過ETS交感神經切除術的患者，他們由主刀醫師所聽到的答案大致相同：“我們從未聽過有這種後遺症＂


醫學統計報告說，這種手術的滿意度是98%，那其實都是偽造的。報告說並未造成任何肉體傷害。


自從1999年後，我接到超過3000封以上email及電話，都是ETS交感神經切除術受害者打來的，email多到我都無法一一回答。


由於不良副作用的關係，一些小型醫院已經不再做ETS手術，在瑞典已立法禁止20歲以下的人作ETS手術，而且必須用其他保守療法都試過而無效才可做ETS手術。


兩三年前，我曾經接到手汗患者email，問我ETS手術的副作用，最後他們還是聽醫生的，最近同樣那位患者再來email說，他當初真後悔沒有聽我的話。


您到底要聽想要衝業績外科醫師的話，還是要聽實際接受過ETS手術的受害者的肺腑之言，您自己決定吧！


我不幸聽了醫生的話，結果摧毀了我的身體、心靈、社交已經十年了，將來勢必還要再受苦下去。


譯者王群光按翻譯：依台灣習慣用語作適當的調整，未失原意。